Comments on: The Forgotten

By: noteworthybyjaz

noteworthybyjaz — Fri, 27 Nov 2009 18:10:58 +0000

Very very true. An unseen illness will never be able to compete with a story about “The Elephant Man.” People like “strange” things to look at

By: Tu Nhan

Tu Nhan — Wed, 25 Nov 2009 18:17:01 +0000

I blame the media. They only report what they deem interesting news, which molds the human mind to only pay attention to the out of the ordinary, rather than the discreet.

By: Cinda Crawford

Cinda Crawford — Fri, 20 Nov 2009 00:21:31 +0000

Jaz, wonderful epistle, gal. It’s hard to get your thoughts down so well and so bravely, especially when you don’t feel well. You’re an outstanding writer & I admire your style. Yes, we’re a few years apart in age, but I can appreciate where you’re coming from. It seems like people don’t expect a younger person to be disabled, especially if they cannot see the reason why. Yes, it’s discrimination, but I believe part of it is because they can’t fathom someone young being sick. If you are and they have to face what they see, then that jeopardizes their grasp of reality and threatens the concept of their own level of health long term. We’re all vulnerable flesh & bones just trying to get by. I wish you well in coping with your illness and moving past it.
All my best, Cinda

By: noteworthybyjaz

noteworthybyjaz — Mon, 09 Nov 2009 03:32:42 +0000

That’s a question I can’t answer. My disability is quite different. I’m a writer and point out the satirical qualities found in real life situations. Fibromyalgia causes me to be in chronic pain. I look 100% normal, but am in pain no one can see (unless of course it gets bad enough to where I need to whip out my came & back brace). I noticed that when I’m on my cane (or sometimes even a wheelchair) people more easily accommodate me. They are nicer and don’t put me through hell like I’m lying.

I fight through my writing. You’ve got to find your own special way to fight. Good luck!

By: escentiallife

escentiallife — Mon, 09 Nov 2009 03:24:07 +0000

I can attend work just fine. I get fired for Oddism.

How does an Autistic be ‘flagrantly’ Autistic or disabled in appearance to avoid constant bullying. I have been passive, Now that I have little time left to live, I feel like fighting for my rights to help other ASD members get theirs more easily in the future.

By: noteworthybyjaz

noteworthybyjaz — Sun, 08 Nov 2009 22:02:43 +0000

You are not alone! Working is very hard, it’s why I can’t have a job….They refuse to accommodate me so I eventually end up getting fired for attendance. It is a horrible thing to go through. The whole health care system sucks, and the whole disability system sucks. I too will apply for SSI/SSDI even though they’ll probably deny me the first time. Keep pushing!

By: autoimmunelife

autoimmunelife — Sun, 08 Nov 2009 21:50:06 +0000

Well written, I wouldn’t have thought of the comparison, but it is so incredibly true!! I have multiple disabilities, fibro being one of them.. but you can’t see them outwardly, so I’m not allowed to return to work by my employer (Walmart) even as a night people greeter, because they want to know when and how I’ll be affected, how long it will last etc. All so I can have a chair to sit on. It’s ridiculous. I deal with more discrimination than that, but for the last year that has been the main fight in my life, and it’s ridiculous!! Unfortunately that’s the only job I’m even capable of doing, so I’m having to apply for SSI/SSDI even though I’d love to be out there actually … y’know… accomplishing something? It’s ridiculous how people who don’t fit stereotypes are treated and discriminated against… and I dont’ just mean in terms of the groups you mention in your post.
J
http://autoimmunelife.wordpress.com